From Andrea was a week until she died at age 17, she was in and out of hospital. Her first three mo

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From the time she was born, Andrea bh shopping Kjærstad Pedersen dying. When she passed away 17 years old, experienced mom Natasha Pedersen that her daughter was released. 3500 Norwegian children are seriously ill or dying. bh shopping Still not barnepalliasjon a separate discipline.
Natasha Pedersen found that the family was much alone the 17 years Andrea survived. The support system was not prepared to support a family all the time waiting for the eldest daughter and big sister bh shopping would die.
Natasha Pedersen had to train nurses, she became a specialist in his daughter's illness and knew more than the doctors. It was difficult, however, that nurses and doctors dared to talk about the difficult, that her child would die.
She established the association "Yes to relieving device and childcare" and started a tenacious and stubborn lobbying. The result is that the new government promises to give priority to the sick and dying children, and have this as a separate item in the government platform. - My perfect children
PHOTO: Stein J Bjorge - From being a young pregnant woman, I was a single mother of a very sick child. There were 60 mil to the nearest hospital. When I called the emergency room I was greeted by a Swedish doctor who specialized in children's diseases. He told me what was my main motto: "It's amazing that you as a mother have discovered this. Natasha, you must never ignore the maternal instinct ".
From Andrea was a week until she died at age 17, she was in and out of hospital. Her first three months were spent in hospital. She received several diagnoses, the first being brain atrophy. The final diagnosis was dead. Leste up
For each diagnosis mum Natasha bh shopping went to the library to read up. Sometimes you got the little baby medication that changed her personality. Mother and daughter developed a close relationship.
- She was so fragile, but she had a strong body language. I could see when she started getting really sick, I got an extreme heightened intuition and perceived me into her, telling her mother.
Malin Evensen (14) is fresh after being diagnosed with leukemia at age 12. I'm probably a bit more mature than many others my age, she said. In retrospect, Natasha discovered that there is a caring family could benefit from, but in Norway this is not set in the system for children, as opposed to the sick and dying adults.
- I could have met someone to share thoughts I carried, received assistance to crisis-level mine. In other countries, we offer barnepalliasjon. Life and death are part of each other's company. If I had a team of people around me, I could have avoided taking the fight alone and released to confront them as afraid to talk about that my child was dying, bh shopping when it was what I needed to talk about. bh shopping Breathing Help and eating assistance
- The medicine is developing rapidly. We can nurture children much longer than before. But care services have failed to follow the trend. Just 20 years ago these children stayed in hospital where they died shortly after. Today they live at home and live longer. This means that the profession moved over to us parents, but we are not prepared bh shopping for this.
Two of the three children who get cancer survive. But the tough life-saving treatment has its price: only 18 percent escapes the complications and problems later in life. After several serious crises the family decided to move to Kristiansand. Andrea had gotten a little bh shopping sister, Isabel. Natasha Pedersen trained as a theologian. Andrea was at times a respite home.
When she had passed 15 years, bh shopping it was discovered that she had major problems with his back. The spinal column was crooked. Doctors at the National